ABOUT THE BOOK

While I Breathe

There are some circumstances that no baby manual or parenting guide could ever prepare you for.

While I Breathe is the gripping true story of how a first-time mother and her baby fought together for survival.

When Susan became pregnant in the winter of 1994, she had a loving husband, a stable home, a life of faith-and soon, a baby to complete the picture of a perfect life. But everything changed the day she was rushed to the hospital for an emergency C-section a full two months before her due date.

Born weighing just two and a half pounds with a heart defect and Down syndrome, baby Ryan was given little odds of surviving his first few days. But he proved to be a fighter whose birth heralded the start of a tumultuous battle for survival.

In their quest to save Ryan's life, Susan and her husband navigated a dizzying maze of hospitals, doctors, treatments, and seemingly endless setbacks-eventually finding themselves going head-to-head against the overreaching, all-powerful authority of the medical establishment itself.

While I Breathe is a raw, poignant exploration of adversity, family, crisis, love, loss, and faith. It is a study of seeking light amid darkness and grace amid sorrow, and of the unconditional love between a mother and her child, a magical little boy who forever changed the hearts of everyone who came into his orbit.

When Susan became pregnant in the winter of 1994, she had a loving husband, a stable home, a life of faith-and soon, a baby to complete the picture of a perfect life. But everything changed the day she was rushed to the hospital for an emergency C-section a full two months before her due date.

Born weighing just two and a half pounds with a heart defect and Down syndrome, baby Ryan was given little odds of surviving his first few days. But he proved to be a fighter whose birth heralded the start of a tumultuous battle for survival.

In their quest to save Ryan's life, Susan and her husband navigated a dizzying maze of hospitals, doctors, treatments, and seemingly endless setbacks-eventually finding themselves going head-to-head against the overreaching, all-powerful authority of the medical establishment itself.

While I Breathe is a raw, poignant exploration of adversity, family, crisis, love, loss, and faith. It is a study of seeking light amid darkness and grace amid sorrow, and of the unconditional love between a mother and her child, a magical little boy who forever changed the hearts of everyone who came into his orbit.

OUR STORY

In Pictures

A rare cuddle at home in 1995

Ryan at play

Christmas in the Pediatric ICU

Ryan two days old in

the NICU - fighting to survive

Ryan's first Christmas

Going home again

A proud moment

So much love

My family at our book event

With my nephew, Andrew, at OSU during his freshman year

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from Susan.

© 2024 Susan M. Reynolds